EMSP Annual Congress, 14 and 15 May 2009, Brussels - Feedback can be found in this section of the website.

For video webcast please visit:
www.ms-in-europe.org/congress2009/video 

Congress Overview
Wednesday, 13 May 2009 ExCom meeting: 13:00 ‐ 17:30 and arrival of delegates for conference starting next day (closed session) Thursday, 14 May 2009 MS‐ID Consensus Meeting: 10:00 ‐ 16:30 • Key note speeches by EU Commission & Parliament  • Results of our pilot European MS Register  • The MS Barometer: Results and further actions  • Code of Good Practice in MS – a living policy  • National High Level Roundtables – the way forward  • European MS Consensus Papers – what is next? • MS‐ID and the Public Health Programme of the EU  Gala Dinner beginning at 19:30 Friday, 15 May 2009 Seminar on EU Impact on the Life of PwMS: 09:30 ‐ 13:15 • The potential of Structural Funds for Patients • What is in it for my country and my PwMS? • Practical hints and tips on the basis of concrete MS related examples • Patients and Consumer Working party of the European Medicines Agency (EMEA) – a model for patient empowerment also on national level? • EU funded projects on MS ‐ currently and in future EMSP Council Meeting: 14:30 ‐ 16:30 (closed session)
The Congress Venue: The 2009 EMSP Annual Congress will be held at the Crowne Plaza City Centre Hotel, Brussels offering best conference facilities and accomodation. The Crowne Plaza City Centre Hotel is located most centrally and is 10 –15 minutes from Midi Railway Station and 25 minutes from Zaventem International Airport. Accommodation: A pool of rooms has been reserved for the nights 13th to 15th May, 2009 till February 3, 2009 at the Crowne Plaza City Centre Hotel, Rue Gineste 3, 1210 Brussels at the rate of €190 for a single room and €217,50 for a double room, breakfast included. The rate for the night 15th to 16th May is €110 for a single and €137,50 for a double room including breakfast. Criteria For Attendance: Delegates attending should be the CEO of your MS Society (who ideally should be the Council delegate participating in the Council meeting on May 15, too) and a key staff person or volunteer responsible for specific issues related to health care facilities for people with MS. If you are one of the 6 countries who participate in the MS‐ID programme, please send those people involved in addition. Furthermore, neurologists, statisticians, PR persons and anyone else interested in the issue of a European MS Register and/or in the European Code of Good Practice, the Consensus Papers and the MS Barometer are more than welcome to attend our conference. We also count on numerous participation by external guests from the European Parliament, the European Commission, industry and other interested parties.
As in our past spring conferences, travel costs and accommodation are on your own.
REGISTRATION DEADLINE:	30th March 2009
Attached links, documents and presentations:  MS-ID Project Website  EMSP Annual Congress 2009 - at glance  EMSP Annual Congress 2009 - Registration Form  Agenda of MS -ID Consensus Meeting May 14, 2009  Agenda EU-Affairs Meeting May 15, 2009  EMSP Profile Speeches and Presentations: 14th May 2009  Welcome remark and introduction Dorothea Pitschnau‐Michel, President EMSP  MS‐ID project: a short introductory review Nicola Bedlington, Scientific Advisory Committee MS‐ID Project Results of the pilot European MS Register  The neurologist’s point of view Dr. Jaume Sastre Garriga, Scientific Advisory Committee MS‐ID Project Results of the pilot European MS Register  Statistical and social aspects Thomas Zwingers, Scientific Advisory Committee MS‐ID Project  Cost of MS in Europe ‐ a meta‐analysis of existing studies and the example of Iceland Maura Pugliatti, MD, PhD, University of Bergen, Norway  MS Register’s medical questionnaire and it’s use beyond the project ‐ the example of the UK Dr. Lee Dunster, Scientific Advisory Committee MS‐ID Project  The Code of Good Practice in MS ‐ a model developed by EMSP Christoph Thalheim, Secretary General EMSP  Code of Good Practice in MS and its European Consensus papers ‐ content development and maintenance Peter Flachenecker, MD, Assistant Prof., Scientific Advisory Committee MS‐ID Project  The MS Barometer ‐ our benchmarking tool for making effective policy John Golding, Vice‐President EMSP National High Level Roundtables as tool to promote the “CODE” ‐ 4 experiences:  Bulgaria,  Hungary,  Romania,  Slovenia  The ESID online database ‐ Introduction Dr. Gerhard Kindle, University Hospital Freiburg  Next steps for the MS Community in Europe ‐ outlook and plans Dorothea Pitschnau‐Michel, President EMSP 15th May 2009  Welcome remark and introduction Dorothea Pitschnau‐Michel, President EMSP  EU action to tackle discrimination and to promote equal access to quality healthcare for PwMS Johan ten Geuzendam, European Commission, DG Employment  Hands in hands ‐ the cooperation between European and national stakeholders in the application process on the example of the European Federation of Nurses Paul De Raeve, European Federation of Nurses  A first rehabilitation centre for the 8400 PwMS in Slovakia – from a private initiative of a PwMS to the well backed Slovakian application to the European Union Juliana Ilencikova PwMS and Dipl. Ing. Peter Molčan Mayor of Sabinov, Slovakia  The value of cooperation and exchange of best practice in Europe‐ the example of Borne Sulinowo Rehabili‐tation Centre for patients with MS. Mariusz Kowalewski, Director Centrum Rehabilitacji SM w Bornem Sulinowie, Poland  The impact of patients and their involvement in the work of the European Commission ‐ the example of the European Medicines Agency Dr. Isabelle Moulon, European Medicines Agency  The impact of patients and their involvement in the work of the European Commission ‐ the example of the European Patient’s Forum Roxana Radulescu, European Patient’s Forum